Thursday, May 24, 2012

Looking back, again

Two weeks ago, I shared a piece here that I wrote about ten years ago about coming out as a disabled, gay man. Here is another look back - my latest column in the Claremont Courier, recalling the Los Angeles riots twenty years ago.

THE FIRES FAR AND NOT SO FAR AWAY

He told me to go to Hell. Actually, what he told me to do is not something I can say here. In any case, it certainly was not what I was expecting.

I had called my friend, because I was concerned, because I wanted him to know I was thinking of him. I had called him to find out if he was okay. After all, the city had gone into chaos, with people setting fires and looting and beating and shooting each other, and my friend was living at the heart of it. I wanted to know that he was safe.

I had gone several times to where my friend was living was his mother in what was then called South-Central Los Angeles. His mother, who spoke only Spanish, was proud of the way she kept her house and had a spectacular garden. The home was essentially an oasis in an area that looked and felt dangerous, an area where, to be honest, I wouldn’t have gone if my friend wasn’t staying there.

My friend knew this. He had spent a lot of time with me in Claremont and knew that where I lived was much different. He knew that what I was used to was much different.

So when I called him two or three days after the L.A riots began with the inexplicable not-guilty verdict in the Rodney King beating trial on April 29, 1992, my friend more or less slapped me over the phone line and told me to snap out of it. He told me he didn’t need my pity. He told me I had no business calling him, that I had no idea of what was going on there, that I was putting my safe comfort in Claremont in his face.

I had not thought of this phone call in years, but it came back to me, painfully, when I read the series of articles in the Los Angeles Times marking the twenty-year anniversary of the riots. It could well be that there were other things going on with my friend that brought out this anger (when I saw him one or two times after this, there was a marked strain in our relationship), but, as was pointed out in many of the Times articles, the King verdicts and the subsequent civil unrest put the differences between people and between neighborhoods or areas into the sharpest of contrasts.

These differences and contrasts were all too evident. Before the riots, I thought the neighborhood where my friend was living was dangerous enough. When I saw the television coverage of the riots, with the fires burning out of control, with people running through the streets and breaking windows and stealing anything they could grab in stores, with the National Guard rolling in and patrolling the dead streets at night with guns, it was like watching something happening faraway, most likely in another country. With all this violence unfolding, with civil society coming undone before my eyes, it was like watching another world from the comfort of my nice, safe living room.

Except it wasn’t. Not really.

I don’t remember if it was before or after I called my friend, but it was seeing a play at Pomona College that made me see that what was going on in L.A wasn’t so far off. For one thing, my parents and I had tickets for a play at the Mark Taper Forum, but the performance was cancelled - due to “mayhem.”

So my mother and I decided to check out the show here. I also don’t recall - this was, after all and as the Times reminded me with its series, twenty years ago - if it was a department production. It may have been a student production, because the play was written by a student.

The student was an African American young woman, and her play was about growing up in poverty. I remember it being quite powerful and emotional, and, although I don’t remember it being a sad play, I remember that suddenly I was about to cry. I suddenly saw how people could be so unhappy and so angry that they not only lash out but also destroy all that they have. I suddenly saw that this was indeed what was going on in L.A, and this made it not so far away.

As the Times stories made clear, things are now better, if not much better, overall, in Los Angeles. Yes, there is high unemployment and other economic hardships, especially among people of color, but the crucial relationship between the police and the community is significantly improved, and the vast majority of people said that they get along and that it is unlikely that such civil unrest will happen again.

I got another reminder not too long afterwards, when the Northridge earthquake struck, damaging the 10 freeway near Santa Monica and causing its (surprisingly briefer than expected) closure. Suddenly, I wasn’t sure about getting to various activities. Summer was coming - could I get to my favorite beach?

Then, there was the Landrum shooting, involving the Claremont Police Department, several years later, and, now, we are being challenged by the Occupy Claremont activists to look at the homeless in Claremont. No, we here in our small town weren’t and aren’t so faraway.

Friday, May 18, 2012

Lost in a bad budget

“‘All we’ve been told is that it’s really bad,’ said Vanessa Cajina, a lobbyist at the Western Center on Law and Poverty, which advocates for the poor. ‘Essentially anything in the safety net is up for grabs now.’”

Is this why, after over five months, I still haven’t gotten my new wheelchair? Is this why, after my wheelchair broke down on January 6 while I was out, I am still using a less-than-ideal loaned chair (but thank God I have it!) and still not able to use my Vmax speech device (which I don’t have the mount for attaching to this chair).

Almost every day, it seems, I read newspaper articles about the horrendous shape the California state budget is, and I can’t help but think about how much I rely on it, not only for my wheelchair and health insurance but also, arguably even more importantly, for paying my attendants, allowing me to live independently. The quote above is from an article that appeared in Friday’s Los Angeles Times in anticipation of Governor Jerry Brown unveiling his revised proposed budget. When the critical “May revise” came on Monday, with Brown revealing the tax revenue from April and his proposal for what to do with it, it was every bit as bad as, if not worse than, what was feared. Instead of a $9.2 billion - with a b - deficit, as was estimated in January, the deficit is now nearly double that, at about $16 billion.

There are many explanations and arguments. People aren’t earning and then buying as much, so tax revenue is down. More people than thought are using state services and resources. Democratic legislators want to raise taxes, but Republican legislators are determined to block such attempts. The governor is desperately hoping that voters will approve temporary tax hikes that he has put on the November ballot.

All this doesn’t make the news any easier for me - not to mention I can barely imagine the sums involved. It is no fun always wondering if the cuts that have to be made, even if taxes can be raised, will mean that I can’t get the equipment and services I need to live my life to its fullest and be productive.

It’s also no fun when, as happened last weekend, I saw a friend who uses a power wheelchair using a pick-up truck to get around. I asked another friend how this is done and was told that my friend is taken out of his chair and put into the truck cab and then a board is used to get the chair into the truck bed.

“Why doesn’t he have a van? He should have a van,” I said. Yes, I was mad but not at my friend. I was, and am, angry at our rich society that makes it so hard to get the help that they so clearly need.

Meanwhile, I got a notice in the mail yesterday saying that my Medi-Cal is being terminated, because I didn’t return a form which I didn’t get in the mail. The notice was mailed the day after I mailed back the form I got after discovering the initial mailing got lost.

No, it’s definitely no fun.

Friday, May 4, 2012

Coming out of the past

Back in the Fall, I wrote about going to a P-FLAG meeting in L.A and how it made me miss the P-FLAG chapter that used to be in Claremont when I came out. It also made me remember a piece I wrote that was published in the chapter’s newsletter, and I thought about sharing it here but couldn’t find it. Then - as always happens, right? - when I was looking for another paper a couple weeks ago, I came across the newsletter. You can read the piece as it was published in the summer of 2001 below.

A short note: At the time, I was using a small voice synthesizer called a LightWriter, which was attached to my chair and consisted of a keyboard and a one-line screen. Unlike the device I now have, it required that I actually type, which ultimately proved to be too laborious, tedious and tiring.


FINDING MY WAY IN NO-MAN’S LAND: ON BEING GAY AND DISABLED

When I attended my first P-FLAG meeting two and a half years ago, I was terrified. In fact, I went only on the condition that my friends Jim and Alan would be attending. I needed them there for support, if not to hold my hand.

Part of my concern had to do with how folks would deal with my impaired speech, even with my use of a speech synthesizer. I face this whenever I encounter people who don’t know me or aren’t used to conversing with me. A bigger fear was in saying, “Hi, I’m John, and I’m gay” in a public setting. I had come out a month or two earlier, and I was now announcing it for all to hear. This is a huge step and scary for many P-FLAG newcomers, but it was scarier for me, because I was afraid people would say, “Yeah, right!”

In addition to having impaired speech, I use a wheelchair. Having Cerebral Palsy, I am disabled - “severely disabled” is how it has always been put - and have been all my life. Although I had had vague sexual feelings and yearnings, I never saw myself in a sexual relationship, and I was never treated as if I would (or could) be, presumably because of my disability. Now, suddenly, at the tender age of 39, I found myself in a sexual relationship, and, in coming out, I wasn’t only saying that I’m a gay man; I was proclaiming myself to be a sexual being.

Although it was and is a great joy to say this, I feel that I was and am taking a real risk when doing so, not only in the straight world but also, and perhaps even more so, in the gay community. I have always loved dancing, but I have always been wary of dancing in bars or clubs, for fear I might freak people out (“Oh, he’s having a seizure!”).

Likewise, I didn’t and still don’t go to gay bars and clubs. I didn’t and don’t want to deal with the “What are you doing here?” stares and the “You think I’d want you?” laughter. (I’ve realized that this is why I didn’t come out five and even eighteen years ago.)

Real or not, these were the messages I got. Shortly after attending my first P-FLAG meeting, I began attending a local gay men’s conversational group. Although I was welcomed - it was an open group, after all, and there were rules about everyone being allowed to speak and not putting anyone down - it was clear to me that I was not wanted there. I went nearly every Thursday evening for the better part of a year, but it was a chore, and I only realized more and more that I didn’t look forward to going. I once had my former boyfriend attend, and he spoke quite movingly and in some detail about being with me, but it didn’t help. I still wasn’t one of those sexually active gay men, that is, if I was even gay. “What are you doing here?” was still the message I got.

In the past year and a half, as I have continued to attend Claremont P-FLAG meetings, if on a sporadic basis, I have become involved with several other groups with much more success. Two of these are the Moon Circle, a L.A area of the Radical Faeries, and, just recently, the California Men’s Gathering. Although my first meetings were still terrifying, I have found the mostly gay and bisexual men in these groups to be, for the most part, quite friendly and warmly accepting. There are still awkward pauses and side glances, and I do wish that I didn’t have to travel so far to participate in the many and varied activities, but I deeply appreciate these groups’ commitment to openness and diversity.

This isn’t to say that all is nice and easy. There have been plenty of times when I’ve had to get on these guys’ cases, rattle their cages, to remind them that I’m there and to accommodate and assist me. However, I sense that they mean well and that, for the most part, they are trying, and there is always the guy like the guy at a recent clothing-optional pool party who, without my saying anything, offered to and was not afraid to take me into the pool.

And there are still times when all my cage rattling doesn’t help. At the California Men’s Gathering over Memorial Day weekend, I read a poem of mine at the talent show. The poem is about my body, about how my body is sexual and desirable despite being crippled and contorted, and the reading was a dramatic one. A friend read it along with me, and, for the first time, I read it as I meant it to be read when I wrote it a few years ago - in the nude. For me, and most of the 250 or so men in the hall, it was a profoundly powerful experience and one of celebration.

I say most, because, as my attendant told me later, a man came up to him in the restroom afterwards and said that my reading was “the saddest part of the show.”

“Man,” my attendant said, looking at the guy as he left the restroom, “you’re missing the point. You just don’t get it.”

He doesn’t. And it’s his loss.

Friday, April 20, 2012

A bit too much sprnging

Spring has sprung - certainly here in So. Cal., where there’s a heat wave this weekend. I’m sitting here typing this shirtless in my cut-off bib overalls.

Spring is known as a time of re-awakening, when all things living come back to life at full force. As wonderful and beautiful as it is, sometimes, as I point out in the following column published in the Claremont Courier this week, this abundance of life is a bit too much.

I will add or reiterate that the bee guy was super intense - scarily so. I thought he would go off on an anti-gay rant when he started off his spiel by saying, “All animals are meant to procreate. Those that don’t, die off.” Later, on his second visit, he told my attendant that a bee sting might do me good. A very intense, weird
man.

NIMHP - NOT IN MY HOUSE, PLEASE

Who knew that bees need more water, more hydration, than any other animal?

Wow! I didn’t.

I learned this fascinating factoid when the bee guy came to my house, and I asked why the bees were dying. He said that it was lack of hydration. That, and that they were smashing the windows, trying to get out.

Yes, the bees were trying to get out - of my kitchen. Or, as the bee guy said, they were heading towards the light. There had been dozens of bees coming into my kitchen over the previous two days. Most were quickly dying, which was enough of a nuisance, but there had still been plenty buzzing around, making life unpleasant and somewhat dangerous.

This is why the bee guy was at my house. I wanted to know why the bees were in my kitchen. After all, I never had had bees in my kitchen - or anywhere in my house. More to the point, though, I wanted the bees out of my kitchen, out of my house, and I wanted them to stay out. Like they always had.

It’s not that I have anything against bees. Sure, they are annoying and can be dangerous, even quite dangerous, but they play a crucial role in nature and make lovely honey, and I agree that the recent massive bee die-off is alarming. But, please, I don’t want them in my house.

But, as happens with disturbing frequency, when the bee guy came to my house, the bees weren’t coming in. Unlike the previous two warm afternoons, when the bees were coming in at a steady pace, it was a cool and cloudy morning, and there wasn’t much bee activity. After looking around a bit, the bee guy surmised that they were getting in through a couple air vents. He went on to explain, among many other things like the hydration, that, like humans, bees look at an average of twelve different places before choosing a place to live.

Again, who knew? “It’s really an amazing thing,” the bee guy said.

He guessed that the bees didn’t like my house and had decided to move on. It looked like he was right until two days later when it warmed up again, and the bees came buzzing, if not roaring, back into my kitchen.

I called the bee guy again, and he said he would come back the next afternoon - a good time, I thought, since it was more likely that the bees would be more active (even if dying once they were in my kitchen) at that time.

Sure enough and much to my relief, when the bee guy came for the second time, there were plenty of bees buzzing about, including in my kitchen. Better yet, he saw them going in and out of a small crack in the wall, a crack that he hadn’t seen before. He plugged the hole - no long lectures this time - and I haven’t had anymore bees in my kitchen.

This is good, because having two cats, along with two caged parakeets, in my house is enough. After having one cat in many periods of my life, having two for the last eight years or so has really shown me, as if I didn’t already see, that we’re owned by our cats (if not all our pets) rather than owning them.

These two cats that rule the house are brothers, both extremely affectionate and with a definite foot fetish, that I got as found kittens. (I still have the Courier classified ad stuck on my fridge.) At the time, I didn’t know their distinct personalities and how correctly I named them. Elijah, with light champagne stripes, is rotund and voracious, likes to bully but is really a huge baby, spending most of the time when he’s outside sticking close to the house and loudly crying. I think he is jealous of Irie who, with his darker orange stripes, really reflects the term from reggae music meaning “positive” and “happy,” being adventurous and sleek, if not sneaky, having the run of the neighborhood and maybe the town.

They do get into spats with each other, but it usually means they want food or out. Usually. At least they don’t bring live birds into the house, as one of my old cats, Sam, was wont to do, and at least they’re not fighting opossums under my bed.

This is what happened to an old friend of mine here in Claremont years ago. She had a cat door in her back door and was awakened one night by her cat and an opossum in a loud, vicious fight under her bed. My friend sat up on her bed and frantically called the police and was told, “Lady, we don’t come out for opossums.”

Years later, I found out that that was wrong. I was living in an apartment here in town and had a roommate from England. He had never seen an opossum and panicked when he saw one one night out on the patio and called the police. Before I knew it, I was lying in bed at 11:30 looking out the window at two officers rooting around the patio with flashlights.

At least the opossum was outside. One another occasion at the same apartment when I had a different roommate, I was having a birthday party. Some friends and I were playing Uno or something at the kitchen table, and the sliding glass door was open in the summer. My cat - another cat named Professor (he really was a genius and quite dapper in his black tux) - came in from the patio, loudly making an announcement. It turned out he had brought his own guest - a baby opossum. And it turned out that it wasn’t dead. It was, of course, playing opossum.

I probably don’t need to say that that was the end of that party.

Wednesday, April 18, 2012

Disabled by shame

This kid needs to be in school. Not only is there no reason for him not to be in school, it is all the more reason for him to be in school.

That was my immediate reaction when I read Steve Lopez’s column a few weeks ago in the Los Angeles Times. Steve Lopez is one of my heroes, an inspiration to me - a sharp, insightful columnist who writes with passion as well as compassion. With this column, however, he didn’t go quite far enough.

The column was about Jose Chojolan, a junior at Fairfax High School in Los Angeles. Although he is quiet and shy, Jose is likable and smart, determined to go to college - preferably U.C Irvine. As his marine biology teacher, Jennie Jackson, is quoted, “Jose is probably one of the most humble, hard-working, reliable students I have ever known.”

That is, when he’s in school.

Jose hasn’t been in school since January, and he doesn’t want to. “He can’t quite imagine returning to school,” according to Lopez.

That’s because he now uses a wheelchair, having been paralyzed from the neck down after suffering a blood clot in his neck. He did visit the school recently but didn’t stay long. As he told Lopez when Lopez visited him at Rancho Los Amigos Rehabilitation Hospital, “I didn’t want them to see me,” referring to his fellow students.

The column is about the students at Fairfax raising thousands of dollars for Jose’s family, who had been living in an inaccessible second-floor apartment and has lost income from taking time off to care for Jose. This is truly awesome.

But I keep thinking about the guy I wrote about a couple years ago who was found by friends in a nursing home decades after thinking he had died. I wish Lopez not only had written about how sad and ridiculous that Jose and his family are left relying on the kindness of students and strangers rather than the state. I wish mostly that Lopez had written more about the shame that Jose feels about being disabled, the shame he has learned to feel, the shame that is now what’s really paralyzing him.

After all, there’s a big sign in the window of his hospital room saying “We Love Jose,” signed by his fellow students. Think about it. He needs to be in school.

Friday, April 6, 2012

They like it hard

“There are no adult children, only adults who act like children... Your son may be 24, but he is not a child, I hope.

“Obamacare and the nanny state treat people like children. They can drink, drive and vote, but they are not responsible enough to pay their way...”

So spouts off a letter-writer not too long ago in the Los Angeles Times, referring in the already enacted provision in the healthcare reform law that allows children to stay on their parents’ health insurance until 26, in yet another incredible example of a conservative shooting themselves in the foot - literally. Come Hell or high water - especially so, in fact - they are determined that people be responsible for themselves and not get any help.

Even though they may very well need the assistance, the Tea Party types are waiting with baited breath for the Supreme Court to strike down the healthcare reform law. In the name of liberty, they insist on self-reliance and taking care of one’s own business, even when there is clearly a way to make life easier and better for all. In the name of freedom, the demand that nobody gets it easy, much less a free ride - and all the more so if they have to pay for it.

As the letter writer concludes, “Covering adult children costs someone or something. Nothing is free. Even lunch from a Democrat.”

This might - might - be arguable, if not understandable, but it often seems that conservatives want things to be even harder than they already are. It is as if life isn’t worth anything unless it is a complete slog and a complete fight. And they’ll bend over backwards and twist the truth to see that this happens.

Consider what is now going on in Lancaster. I have written a few times about this town in the desert northeast of Los Angeles and its mayor, R. Rex Parrish, who favors praying to Jesus at City Council meetings. I have written about there being a federal investigation into surprise inspections of Section 8 housing, often accompanied by armed officers, in the city. These units are usually occupied by blacks and Latinos. Now, the city has sued Section 8, claiming it coerces minorities to move to Lancaster rather than, say, L.A. It posits that this is unfair to minorities, despite the fact that housing in Lancaster is more affordable and less dense.

Talk about twisting truth and logic! In the name of fairness, conservative Lancaster is out to make things harder, if not downright impossible, for people.

Friday, March 23, 2012

Sliced bread - and the pits

I recently got a keyless lock on my front door, and I’ll tell you, it’s the greatest thing since sliced bread.

For the longest time, I wished I could have some kind of automatic door - something like the remote control unit that I was given in college to open the door to my dorm and hall. After I got out of school, my father made a key holder with a small piece of wood. I could handle it well enough, but it was always a challenge, a test, to get the key into the keyhole, especially if I was cold. Yes, it always felt good, like a victory, when I got the door open, but it was a pain, and that it took a few minutes or sometimes more pissed me off.

I kept thinking of those keypads where you punch in a code to open a door. Wouldn’t something like that work? But then all of my attendants would need to know the code, and maybe one of them might let it slip out to someone they knew.... More to the point, though, didn’t something like that cost thousands of dollars? I always thought there was no way to afford what I wanted.

This became an actual problem when I got my Vmax speech device a couple years ago. With it mounted on my wheelchair, unlocking my front door was all but impossible. Soon, I left the door unlocked when I went out on my own with the Vmax. Although my neighborhood is relatively quite quiet and safe, I knew this was unwise, if not asking for trouble. It only got worse when, because it was just easier, I began leaving the door unlocked - just this one time - when I left on my own without the Vmax. An occupational therapy appointment last year was no help at all. (I suspect I’m far more independent than any of the other patients seen.)

So, last month, when I complained about this after I returned home to find that an attendant had inadvertently locked the door, it was suggested I look on-line for a keyless door lock. Well, it turned out - hello! - that there were plenty of them, and I found one that, like many, was under $100, probably because it wasn’t marketed to the disabled (the picture in the ad and on the box when I got it showed a woman at a door with her hands full with a baby and a shopping bag). I ordered it on a Wednesday and, with standard postage, got it on Friday.

One of my attendants, who happens to be quite handy with such things, installed it easily that evening (I had also been worried that installation would be another big cost), and my life changed. The unit works on the dead bolt (I no longer use the door knob lock) and works just like a remote car key, with the fob taped onto the armrest of my wheelchair. There is a satisfying buzz and click when it works, and it even works when I’m in my van in the driveway.

I have to say that, for a day or two, I felt sad and even guilty about not experiencing the thrill of victory in unlocking the door with the key, like I was being lazy and giving up, but I’ve been much more thrilled with it now being so much easier to unlock the door. Like I said, the best thing since sliced bread!

But what about my attendants? How do they get in when I’m not here or when I’m in bed? Do they each need a fob, which I have to order at extra cost? No. As I was reminded, there is a back door that they can use and for which I got them keys. Hello!

Unfortunately, I have been unable to use the Vmax, to have it on my wheelchair - the reason I got the keyless lock - for nearly three months. Unlike sliced bread or the best thing since, this is the pits, and the reason is even more so.

My wheelchair broke down when I was out on January 6. Yes, Happy New Year and Happy Epiphany! Having witnessed my doctor signing a prescription for the new chair, which I can tilt back with the push of a button, back in October and having been told that I should get it in January, I called the vendor to see if I would be getting it soon and was told that my doctor’s prescription hadn’t been received. Why didn’t I know about this?... After making a scene (and later finding out that my doctor had signed the wrong form when I saw him in October), it was straightened out, and we are now waiting for Medi-Cal’s approval.

Meanwhile, I couldn’t get my chair fixed, because Medi-Cal is (hopefully) funding the new one. I have been using a wheelchair which I’m very grateful I have access to, but not only is it not the best for my legs and back, its frame is different and can’t accommodate the mount (which costs hundreds of dollars, being, unlike with the keyless lock, marketed for the disabled) I had for the Vmax. I had been told that the new mount for my new chair could fit on the chair I’m using, but when I received it last month, it turned out that it couldn’t.

So I’m enjoying some good sliced bread - or the best thing since - but I’m also having my share of pits.